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Modules:
Introduction
1. Advance Care Planning
2. Communicating Bad News
3. Whole Patient Assessment
4. Pain Management
5. Assisted Suicide Debate
6. Anxiety, Delirium
7. Goals of Care
8. Sudden Illness
9. Medical Futility
10. Common Symptoms
11. Withholding Treatment
12. Last Hours of Living
13. Cultural Issues
14. Religion, Spirituality
15. Legal Issues
16. Social and Psychological
More About:
Hospice Care
Clergy and Faith Communities
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Introduction to Medical Futility
Definitions of Medical Futility
Objectives of this Module
Introduction to Medical Futility
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Patient or surrogate requests therapy that the physician does not think is beneficial
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Clear, unequivocal medical futility is rare
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Conflict resolution is often the issue
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Physician may be pursuing unrealistic or unwanted plans
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Proxy may have difficulties in performing role
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Misunderstandings about prognosis
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Personal factors such as distrust or guilt
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Values differences
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Understanding the conflict may allow resolution
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Fair process for conflict resolution is recommended for intractable difficulties
Imagine a case involving a patient in a vegetative state, whose life is being supported mechanically, and whose family insists that "everything be done"
Questions for Consideration
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How should physicians approach this type of situation?
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How might the physician better understand the reasons for the family’s seemingly irrational request?
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Are there techniques that are useful for ensuring that both parties feel they have been supported and understood?
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In those rare instances where a mutually acceptable resolution is not possible, how should the physician balance his or her own concerns with those of the patient and family, and those of the health care system?
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Ultimately, what is the physician’s responsibility in providing futile care?
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Common Responses
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Health care team may feel that the family is:
- Wasting scarce economic resources
- Causing increased pain and suffering prior to patient's ultimate demise
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Physicians may distance themselves from the family
- Accuse family members of ulterior motives
- Argue that nonprofessionals should not be allowed to make "medical decisions"
- Already stressed by the realities of life-threatening illness
- May feel isolated, misunderstood, or abandoned
- React by suggesting that the health care team does not "care" about their loved one
- Impute financial, racial, or other prejudices to the team
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Definitions of Medical Futility
- Won’t achieve the patient’s intended goal
- Serves no legitimate goal of medical practice
- Ineffective more than 99% of the time
- Does not conform to accepted community standards
The Nature and Limitation of Futility Definitions
Evidence
In the majority of situations in which death is imminent, consensus is reached and life-sustaining interventions are not provided. Investigators using the SUPPORT study database found only 32 patients (0.7%) of 4301 whose prognosis for survival was less than 1% on their third hospital day who did not have a DNR order in the medical record
- life-sustaining interventions for patients in a persistent vegetative state
- resuscitation efforts for the life-threateningly ill
- use of chemotherapy in patients with far advanced cancer
- use of antibiotics or artificial hydration for patients who are in advanced stages of the illness
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Is This Really a Futility Case?
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Unequivocal cases of medical futility are rare
Attempt to resuscitate a patient who is decapitated. In this situation, CPR would be futile according to all conceivable definitions
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Miscommunication or value differences are more common
- Conflict over treatment; not clear how to reach resolution
- One view--physicians should neither offer nor provide therapy that is unlikely to work, or will only result in a poor quality of life
- Violate professional integrity
- Inflict harm without possible benefit
- Other perspective-- why should physician values override patient and family values, especially when those values are religiously based?
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Case resolution - an important principle
- Difficult to differentiate "futile" therapy from "low-yield" therapy
- Case-by-case basis for defining futility recommended by AMA’s Council on Ethical and Judicial Affairs
- Need to find a fair process of resolution more important than futility definition
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Types of Futility Conflicts
One party wishes to preserve life "at all costs" while the other party concludes that preserving life is not a worthwhile goal
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Disagreement over benefit
Pursue a therapy that is highly unlikely to achieve the agreed upon goal (i.e., a "miracle") while the other party does not believe the chances of success are high enough to continue treatment
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Objectives of this Module
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List factors that might lead to futility situations
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Understand how to identify common factors
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Understand how to communicate and negotiate to resolve conflict directly
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Understand the steps involved in fair processes to resolve intractable conflict
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