Guiding Principles - An Overview
Seven Guiding Principles
Guiding Principles - An Overview
An understanding of the characteristics common to stressful situations involving sudden illness will help the physician to guide care more effectively. Although each situation will differ, we propose 7 guiding principles to help with decision-making during intense situations. We have outlined these principles in this overview. Following the overview, we provide a detailed discussion of each of the 7 principles.
Principle 1. Provide Structured Interaction
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Establish regularly scheduled communications between:
- One person from the family and
- One person from the health care team
- Helps to keep things on track
- Ask the family what they understand before giving them information
- Respond to their emotions (and anticipate that emotions will be prominent and fragile)
- Establish a follow-up plan, even if it’s just for the next few hours
Principle 2. Communicate the Range of Possible Outcomes
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In situations of prognostic uncertainty, do not wait to communicate, even if there is little known information
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Tell what you do know as soon as possible
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Provide the relevant information to help the patient (or parents if the patient is a child) and family make informed choices
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Discuss all possible outcomes
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Be as clear and direct as possible
Principle 3. Identify Decision Points in Advance
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Identify the points in the future when additional information will be available that will help with decision-making
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Be clear about when you think decisions will be needed
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It is important to begin to prepare the family early in the process
Principle 4. Use the General Goals of Care to Guide Decision-Making
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Discussion of goals of care should be ongoing
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Decisions about treatment priorities should be based on the patient’s goals and beliefs
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It cannot be stressed enough how important this step is
Principle 5. Take Sociocultural Differences Into Account
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If necessary, try to involve a colleague to help transcend sociocultural differences that may impede supportive decisions
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Explain concepts in clear language that is easy to understand
Use words like "worse" rather than "progressing"
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Check understanding regularly
Principle 6. Manage Symptoms Effectively
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Sudden illness, particularly trauma, is accompanied by multiple symptoms and suffering
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Always ensure that all symptoms are managed effectively, throughout the course of the illness
Principle 7. Consider the Impact of Stress on Caregivers
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The chaos and occupational stress of situations involving sudden illness can have considerable impact on caregivers
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They experience a range of emotions during any given case of sudden illness
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As cases accumulate, so may the stressors
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These may be manifested in a caregiver’s personal and professional life and may affect clinical decision-making
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Seven Guiding Principles